DENVER — According Colorado Rare, one in 10 people living in the state has some sort of rare disease.
On Wednesday, a handful of parents and advocates brought their concerns of the needs of families battling rare diseases to the State Capitol.
The star of the day was 7-year-old Lily, who is battling Hypermobile Ehlers-Danlos syndrome.
To kick off the day, Lily addressed a group of citizens inside the Capitol.
The group said the hope is to increase ways to bring families who feel alone together.